Problem addressed
Although national systems promote entrepreneurship and innovation through different projects, these initiatives are rarely accessible to people with intellectual disabilities, and hardly any measures have been put in place to investigate the potential impact of entrepreneurship on social inclusion. The Incubators for Co-productive Enterprises and Social Inclusion (IN-CUBA) project has identified that people with intellectual disabilities face various challenges to access entrepreneurship mainly because there is a lack of support to develop and transform their ideas and projects into reality and because no established network of organisations specialised in this area exists. Other main challenges are little training and coaching, lack of information, no knowledge of the legal and regulatory framework and its complexity, lack of accessibility to the supporting offer for the creation of an enterprise and in certain cases the belief that people with intellectual disabilities are unable to work.
Innovative solution
IN-CUBA was implemented between 2019 and 2021. It aimed to foster the social inclusion of people with intellectual disabilities through an incubator[1] methodology, based on co-production[2]. It was developed as a large-scale project, based on co-production, and involving both employers and people with disabilities involved. The objective of IN-CUBA was to develop a methodology to transform ideas into entrepreneurial projects. For people with intellectual disabilities, the project provided a new and challenging perspective, enabling them to develop skills and acquire insights into co-production in the development of entrepreneurial projects. The IN-CUBA methodology is based on five phases:
1. Enabling, empowering: Who is interested in an entrepreneurial project? How to stimulate the potential of those who are interested?
2. Idea generation: How to identify ideas?
3. Planning and realisation: Make the project real.
4. Stabilisation: setting-up a clear and effective organisation to realise the initiative within an appropriate timeframe and with the appropriate financial plan.
5. Feasibility: Assess the project, its impact on the life of those involved and its social impact.
Eight partners from five European countries participated in the Erasmus+ project, coordinated by Luxembourg’s Association of Parents of Children with intellectual Disabilities (Association des Parents des Enfants Mentalement Handicapés, APEMH Foundation) and supported by the Association for Research and Training on Integration in Europe (Association de Recherche et de Formation sur l’Insertion en Europe, ARFIE). The partnership developed a 36-month action plan around three main axes: (i) developing a set of activities to cluster challenges for people with intellectual disabilities to access entrepreneurship, and a methodology to overcome this; (ii) testing a set of activities to put that methodology into practice; and (iii) evaluating the results and their impact on the community and the beneficiaries.
The co-production approach created a space where all stakeholders could share their knowledge and skills on an equal footing. This triggered a mutual learning effort that helped all participants and facilitated the project goals. It also brought a change of perspective, expanding the concept of enterprise to embrace something creative, personally fulfilling and validating, particularly where it requires courage. The project enhanced equal opportunities and recommended specific policy initiatives for people with disabilities to foster access to entrepreneurship and social inclusion. This allowed for sustainable behavioural change for the target group by increasing their self-confidence, enhancing their level of autonomy and facilitating a more active role in entrepreneurship.
The methodology is the result of several steps: first, an analysis of users’ needs and requirements, then a research on levers and obstacles in the access to entrepreneurship for people with intellectual disability. In addition, several co-productive focus groups helped shape the result. Several additional steps took place after the adoption of the methodology, namely the testing and the feedback/evaluation. The partnership proceeded with testing the methodology in dedicated pilot actions in each country involved. The testing of the IN-CUBA co-productive methodology, aimed at incubating entrepreneurial ideas and projects for people with intellectual disabilities, was a very important phase of the project, as it allowed to put into practice the elements elaborated by the partnership and get significant feedback from all the users involved. This feedback, together with the evaluation reports, helped updating and refining the methodology. This methodology, based on the principles of co-production, places the person at the centre and focuses on their potential, providing useful tools in order to develop an alternative and possible way to enter the labour market as entrepreneurs.
A summary of the activities carried out by each partner involved in the project is available in Report Pilot Actions: testing the co-produtive methodology for incubating enterprises for people with intellectual disabilities.
During implementation, partners were equally involved in designing, testing and evaluating project activities and results. Co-production worked at three different levels: as a way of working for the partnership itself; as a way of working to achieve project objectives; and as a requirement embedded in the IN-CUBA project methodology.
Each partner implemented the activity in their country by meeting with experts and organising co-production focus groups to bring together service users, their families, enterprises and community representatives to discuss access to entrepreneurship for people with intellectual disabilities.
- APEMH Foundation: social service provider for people with intellectual disability based in Luxembourg. APEMH was the Project coordinator, responsible for the development of the action and of the activities carried out in Luxembourg.
- Association for Research and Training on Integration in Europe (ARFIE): a network of service providers and research centres aiming at improving the support, the social inclusion and the availability of services for people with disabilities, people with important dependency needs and with associated mental health needs. ARFIE supported the coordinator in the development of the action and was also responsible for dissemination (BE/EU);
- DeLork/HUBBIE: Social Service Provider for people with disability based in Brussels. It was responsible for activities carried out in Belgium.
- Ampans Foundation: Social Service Provider based in Catalonia and responsible for activities carried out in Spain and for the evaluation of the pilot action (ES);
- Assistance Cooperative for people with disability, elderly and children (Cooperativa Assistenza Disabili infermi Anziani Infanzia, CADIAI): Italian Social Cooperative managing services for people with disabilities, children and elderly people. It was responsible for the activities carried out in Italy, together with OpenGroup (IT);
- OpenGroup: this Social Cooperative managing various services for disadvantaged groups was responsible for the activities carried out in Italy, together with CADIAI. Due to its experience in developing digital solutions for people with disabilities, OpenGroup was also responsible for transferring the pilot action to an online environment (IT);
- FENACERCI (Federação Nacional de Cooperativas de Solidariedade Social): Portuguese National Federation of Social Solidarity Cooperatives, it was responsible for activities carried out in Portugal (PT);
- Research and Clinical Centre (CREA) San Sebastiano Foundation of Misericordia of Florence (Fondazione San Sebastiano of Misericordia di Firenze): Research centre in the field of mental health based in Florence (IT), it was responsible for the evaluation of the quality of life of the beneficiaries involved in the pilots.
The funding was divided between the various organisations according to the activities implemented.
[1] An incubator is an organisation that helps new and start-up companies to develop by providing support services and enabling access to the resources they need. In the context of IN-CUBA however, incubator is defined as a support for the development of projects and ideas.
[2] For the purposes of the IN-CUBA project, co-production is defined as a way of doing that sees all actors (people with intellectual disability, their families, experts, local representatives) involved as equal contributors towards the same goal in order to reach a collective and participative outcome, i.e., an inclusive and participatory way of developing and delivering services.
Key results and benefits
The project took a threefold approach to evaluation:
(i) Collective monitoring during the implementation period: partners held regular online meetings to discuss the development, results and effectiveness of the various activities. This ensured that activities achieved their aims and fostered a collective response to overcoming issues arising.
(ii) An internal evaluation (Intellectual Output 5) of the methodology and its application (pilots), which showed that the project achieved its goals and produced high-quality end results. Two types of internal evaluation were carried out. The first was the evaluation of the ‘Quality of Life’ to examine the impact of the entrepreneurial project on the whole quality of life and on the different areas and aspects of life of each beneficiary involved (e.g. personal identity development, psychological well-being, sense of community inclusion, autonomy, sense of belonging, opportunities for growth). The results are available in Intellectual Output 5. The second was to assess the impact of the pilot project and verify whether it contributed to generating changes in society (results available here).
(iii) An external evaluation by Dr Roger Banks (Consultant Psychiatrist in intellectual disability, NHS England, see here) is underway. Dr Banks supported and advised the partnership on aspects of co-production, quality assurance in the involvement of people with intellectual disabilities, consistence and coherence.
The IN-CUBA project achieved its aim of improving professionals’ skills, creating new opportunities and increasing users’ self-development. It also went beyond its initial aim by triggering a process of personal growth for the beneficiaries and service providers (increasing their self-confidence and fostering a change of perspective on opportunities).
Approximately 100 beneficiaries (twenty from each partner country) participated in the various stages (interviews, focus groups, workshops, etc.), accompanied by three educators, a professional expert in entrepreneurship, one family member and a representative from the local community (where possible).
Eight interconnected results (the so-called Intellectual Outputs) were developed by the end of the project:
IO1 - Users’ needs and requirements: This output focuses on the results of the ENABLE project[1] and the experiences of the partners involved, as well as on the situation of entrepreneurship for people with disabilities, in particular focusing on the existing literature at European and International level.
IO2 - Report: levers and obstacles in the access to entrepreneurship for people with intellectual disabilities: this output, which is a research survey, points out to what extent entrepreneurship is accessible at European level for people with intellectual disability, and what the main barriers are in this regard. It also shows what are the systems in place, to what extent they are accessible, and what development opportunities could be envisaged in terms of entrepreneurship for people with intellectual disability.
IO3 - Business incubator toolkit: co-productive methodology: This was the main output of the project and consisted in a methodology based on co-production to support the development of ideas and projects to transform them into entrepreneurial projects.This output is the result of 3 components: 20%: Inputs from experts and incubators; 20%: Results of a European survey; 60%: Co-productive Focus Groups organised in each country involved to discuss with users, their families, experts, and representative of the community, enterprises and the support that is needed to set up an activity. The result of these 3 components is a methodology for incubation divided in 5 steps: 1) Enabling, empowering (triggering potential); 2) Collecting, generating and developing ideas; 3) Idea development; 4) Stabilisation; 5) Feasibility, Impact, Evaluation.
IO4 - Pilot actions: testing of the methodology: This output summarises the results of the pilot action that tested the co-productive methodology developed in IO3. The pilot, implemented through co-productive focus groups, was a very important phase of the project as it allowed to put into practice the elements elaborated by the partnership and received valuable feedback from all the users involved.
IO5 - Evaluation and impact analysis: This output focuses on the pilot action, which has been evaluated from two different perspectives: a) Quality of life of the persons involved, focusing on how the project fits in their daily activities ; b) Social impact, focusing on whether the activities carried out in the pilot contributed to generating change in society.
IO6 - Video tutorials: The IN-CUBA Methodology has been made accessible in easy to understand video tutorials in all the project languages. The videos are available at: https://co-production.eu/videos/;
IO7 - Training guidelines: The Methodology has been also enriched by a set of Training Guidelines for educators and trainers in order to make it transferable. The training guidelines are based on the work developed by all partners in the definition and implementation of a co-production methodology that aims to empower persons with disability with tools to create and develop entrepreneurial projects. The guidelines aim to empower professionals working with persons with disability with contents and resources to facilitate the adoption of the co-production methodology for incubation.
IO8 - Publication: outcomes and achievements. The final Intellectual Output takes stock of all the work done during the implementation of IN-CUBA. It reports on the results and main outcomes and concludes with policy recommendations for policy makers and relevant stakeholders with the aim to create a more inclusive labour market focusing on people with intellectual disability.
All Intellectual Outputs are available here.
[1] The ENABLE project allowed a partnership of organisations active in the disabilities sector to test co-production as a way to provide services for people with intellectual disability. IN-CUBA project was based on the outcomes of ENABLE project.
Potential for mainstreaming
The IN-CUBA project implemented co-production in all activities. This proved to be an important tool to build strong partnerships and to ensure an equal say for all involved.
The main project results can be transferred and applied to other contexts/areas to provide guidance on professional tools to support people with intellectual disabilities to identify and set-up entrepreneurial projects and to support their professional independence. The IN-CUBA partnership used a five-step co-production methodology to support the development of ideas and their transformation into entrepreneurial projects.
To mainstream this practice, the IN-CUBA project produced videos and published training guidelines for educators and trainers. The training guidelines are based on the definition and implementation of a co-production methodology to empower people with disabilities to create and develop entrepreneurial projects. The guidelines also provide professionals working with people with disabilities with the resources to facilitate the adoption of the co-production methodology for incubation. The training guidelines are organised into a seven-module curriculum (34 hours).
All materials are available on the IN-CUBA website:
- Video tutorials on how to apply the methodology. Videos are fully accessible and transferable, as they are user-friendly and translated into all of the project languages (Dutch, English, French, German, Italian, Spanish, Portuguese);
- Training guidelines for educators and trainers. Using clear and understandable language, these make the methodology and its application fully transferable and usable by other professionals.
Case study details
- Lead organisation
- ARFIE (Association de Recherche et de Formation sur l’Insertion en Europe)
- APEMH Fondation (Association des Parents des Enfants Mentalement Handicapés)
- DeLork/HUBBIE
- Ampans Foundation
- Cooperativa Assistenza Disabili infermi Anziani Infanzia, CADIAI
- OpenGroup
- FENACERCI (Federação Nacional de Cooperativas de Solidariedade Social)
- Research and Clinical Centre (CREA) San Sebastiano Foundation of Misericordia of Florence
- Pays
- Luxembourg
- Thèmes
- Active inclusion and employabilitySocial integration of those at risk
- Target groups
- Individuals with disabilities
- Level of action
- EU
- Source of funding
- Public - EU
- Programming period
- 2014-2020
- Project start
- 2018
- Project end
- 2021
- Type of initiative
- Integrating disadvantaged groups
- Participants
- 100 individuals
- Internet and social
- EU fund
- Erasmus +